Texas Children's Cancer Center RTS Site
Home page: http://www.txccc.org/content.cfm?content_id=717

National Organization for Rare Disorders (NORD)
Home page: https://rarediseases.org/

Gene Reviews
Home page: http://www.genetests.org

Human Growth Foundation
997 Glen Cove Avenue
Glen Head NY 11545
Phone #: 516-671-4041
800 #: 800-451-6434
e-mail: hgf1@hgfound.org
Home page: http://www.hgfound.org/

Little People of America, Inc
250 El Camino Real
Tustin CA 92780
Phone #: 714-368-3689
800 #: 888-572-2001
e-mail: info@lpaonline.org
Home page: http://www.lpaonline.org

MAGIC Foundation for Children's Growth
6645 W. North Avenue
Oak Park IL 60302
Phone #: 708-383-0808
800 #: 800-362-4423
e-mail: mary@magicfoundation.org
Home page: http://www.magicfoundation.org

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda MD 20892-3675
Phone #: 301-495-4484
800 #: 877-226-4267
e-mail: NIAMSinfo@mail.nih.gov
Home page: http://www.niams.nih.gov/Health_Info

NIH/National Eye Institute
Building 31 Rm 6A32
Bethesda MD 20892-2510
Phone #: 301-496-5248
e-mail: 2020@nei.nih.gov
Home page: http://www.nei.nih.gov/

NIH/National Institute of Dental and Craniofacial Research
Phone #: 301-496-4261
e-mail: nidcr@nih.gov
Home page: http://www.nidcr.nih.gov/

National Foundation for Ectodermal Dysplasias
410 East Main Street
Mascoutah IL 62258-0114
Phone #: 618-566-2020
e-mail: maryk@nfed.org
Home page: http://www.nfed.org